When you have to be the birthday party mum.

It’s our eldest daughter’s 7th birthday tomorrow. 7 seems really quite grown up, doesn’t it? Like she’s not a teeny little girl any more, and is getting scarily close to 10. Which means she’ll almost be in secondary school and then she’ll be moving out. My baby is about to move out! *hysterical weeping*

She’s not so much having a party, more a gathering amongst her friends at our house where they’ll watch a movie, have pizza, throw popcorn at each other and spill nail varnish on my coffee table.

So not too much of the pressures of throwing a full-on party style party with games and screaming children (except her little brother maybe), so why am I dreading it?

I guess I’m sort of looking forward to it, but I have this big lumpy stressy thing lurking in the pit of my stomach. We’re not really like any other family, are we? Her friends all know I’m in a wheelchair, although how much she gets asked about that at school I don’t know. I am completely comfortable around my own children, and to them anything I do physically which is, let’s face it – a bit odd, goes unnoticed because to them it is normal for me. But with other children in the house, most of whom I haven’t really spent much time with, I feel like I’m going to be stared at by little girls from school and it’s quite a familiar feeling. They’ll gawp at my floppy hands and my picking up a mug of tea with both of said floppy hands… And they’ll notice they were staring and feel awkward, and they’ll think to themselves “why does Amélie’s mummy sound different?” I’ll come over to the sofa and say (after psyching myself up) “right girls, can you go and wash your hands before food please?”, and they’ll look at me like I’ve just thrown up on myself.

Maybe they won’t think that at all. There’s a big chance I’m being completely pathetic at stressing about being ‘the mum’ at my daughter’s pizza party. How ridiculous is that. Amélie won’t care at all. All she cares about is the fact that she gets to have school friends over ON A SCHOOL NIGHT, and they’ll all be really giggly and excited. I don’t want her to ever feel embarrassed by having me as her mum.

I really hope she has a good time. I hope it’s everything she wants it to be and next year mummy will be a bit more organised several months in advance and book her a swimming party. Better start mentally preparing for that about…now.

To my tiniest 5lb 10oz of first babyness… Happy birthday for tomorrow. Love you baby.

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Half-term stress no more

We’ve only just had the Christmas holidays with the kids off school but next week they’re at it again, being at home and not in the hands of their teachers for a week. A whole week.

I think I’m a bit of a stressy person and being a wheelchair user I find there are a lot of things I can’t do with the kids that I wish I could, and would certainly do if I was more able. Our kids don’t go without exciting adventurous activities, but when it comes to half-term I try and think of simple things that we can do at home, or cheaply out and about which will keep them entertained and my sanity intact.

1. Cook things. Cakes, biscuits, the evening meal, anything really. Get the kids involved in chopping food, measuring and pouring. Cooking with kids can indeed be very stress inducing but if you resign yourself to the fact that it may all go wrong, you’ll get very messy and they will undoubtedly lick their fingers and then touch the food again, anything good that comes from it is a bonus! You are not obligated to eat the food that they have helped make.

2. Go out for a colour walk. Get outside either to a park or the woods or even just into town and get the kids to collect things of every colour. A green leaf. A brown stick. A pink shell. A read leaflet. You get the idea. Make a collage at home. Channel your inner Blue Peter goddess.

3. Write a story. Each day of the week write a paragraph to a story. Have a character each that you can name and draw. Even do one story each but don’t read anything aloud until the end of the week. I think my almost 7 year old will love this. You could even type them up or scan them in if you can work a piece of technology. Scanners never work though do they.

4. Have a charity toy sort out. This is really decluttering sugar-coated as a fun activity. But your kids will probably know better which toys they still play with and which they don’t. You can even explain to them that some children don’t have money to buy toys and so we can give up some of the things we no longer need so that they can be loved by someone else. Take the children with you to the charity shop, or a local hospital to donate the toys. They’re more likely to want to help people if they can understand why it’s needed, by seeing for themselves how it is appreciated by others.

5. Make mosaics. Cut up bits of magazine, newspapers or junk mail and make beautiful coloured pictures. You could even buy some blank cards that they can make into birthday or greetings cards for their family, friends and teachers.

6. Make sock puppets. There are ALWAYS odd socks at the back of the drawer that you’ve put there in the hope that one day they will be reunited with their twins but let’s face it. It’s not happened for 6 months. It’s not going to happen. Get out the sharpie pens, glue, scissors and coloured paper and make sock monsters.

7. Make smoothies. Grab the fruit that’s going a bit brown, chuck it in the blender with some milk or yoghurt and get the kids to press the button (they always want to press the bloody button). Snack sorted.

8. Go to the beach. If you live by the coast, that is. Throw pebbles into the sea. Build rock towers. Bury your feet. By a box of 4 supermarket own-brand Cornettos for £1 and act like you’re the best parent ever for getting the kids ice cream at the beach even though it’s February. (And not been robbed of over £10 on 4 ice creams from the counter). Discreetly steal some pebbles and take them home to draw on or paint. They have now made a paperweight for Nanny’s birthday.

9. Get the kids dusting and polishing. Seriously they love it. My kids squeal with excitement if they get to ‘do the spray’. Of course, this needs to be supervised so they don’t end up spraying Mr Muscle in their eyes or drinking Dettol, but kids enjoying cleaning can only be a good thing. Just remember to keep the products out of reach of very little ones, but they can certainly use a cloth to do some questionable wiping. My parents used to let me and my brother tie dusters to our feet and slide around the French parquet flooring in our hallway. Great fun.

10. Read books! It’s the simplest thing ever but I remember being at my Gran’s for half term as my mum had to work still, and we’d walk to the local library and pick up a few books and I’d lay back fully reclined in my Granddad’s La-Z-Boy arm chair and reading entire Babysitters Club books in one day (I was very proud of myself). But there was no Sky TV or Netflix or apps to play on. There were real books and my brother and I loved it, despite trying to claim we were bored. Having said that…

“But Mummy I’m booored”

11. Let them be bored. Like I’ve just said, I remember being bored as a child. But in hindsight this was definitely not a bad thing. I think kids need to be bored from time to time. They don’t need constant entertainment and amusement all day every day. I do most of my best thinking and mental planning when I’m bored in the car on long journeys (if Rafe is asleep and the girls aren’t arguing). But I think a bit of ‘boredom time’ is good for their brains. It gets them thinking. It gets them inspiring and motivating themselves to do something else and use their imagination. Kids have fabulous ideas of their own. If you let them get a little bored every now and then, they’ll access those little sparks of ingenuity.

12. Put a movie on. There is absolutely nothing wrong with putting trashy TV or a cheesy film on for the kids whilst you get the proper housework done or if you need to sit and chill for a bit or feed the little one. Children won’t turn into vegetables just because they’ve had a bit more screen time than in their usual week. If they are really into a funny game on the ipad then let them indulge themselves. There are also loads of apps available that look like games but are actually teaching little ones basic maths, phonics and music skills. My daughter uses Times Tables Rock Stars at school and also at home on the iPad and it is very game-like whilst also getting her maths up to speed, and more.

13. Open a home beauty salon. This is where you cover the house in newspapers and allow the children to paint your nails. Or let them loose with the hair-stuff box and attack you with 3000 hair clips, which you’ll still be pulling out of your own hair at 9pm. Look how pretty…

I think those are most of the things I’ll be doing with the kids in half term. Of course there will also be the inevitable food shop with children that I can’t avoid, and because of the stress that might cause, we will probably also go for brunch in Wetherspoons on one of the days. Who would’ve thought pancakes and maple syrup in a gastro-pub would be such a good bribe for good behaviour.

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How to shop wisely as a family

I’m a 31 year old mum of 3, who also happens to be a wheelchair user. So as a household of 5 (although my partner pretty much eats for about 3 people, whilst remaining lean and a healthy weight. Grr) we need to think carefully about how we spend our money.

I would like to think I’m quite savvy when it comes to the weekly food shop. For the 5 of us, we probably spend about £50 a week on food. Maybe a little more at the weekends if we have lunch out somewhere.

Here are my ‘mum’/’parent’ tips on how to shop well for a family.

1. Shop in smaller supermarkets..I don’t mean the ‘local’ smaller versions of big supermarkets like Sainsburys Local or Tesco Express, because they tend to increase the prices in those conveniently located stores and don’t stock as many cheaper ranges as the bigger versions of their shops. I mean ‘discount’ supermarkets like Aldi and Lidl. Anyone who knows me will know that I find it hard to go a day or two without mentioning something I’ve bought at Aldi. I’m a self-confessed superfan.

I like the lack of choice. You want mature cheddar? There are probably 3 options at most. Including one brand name. It’s not going to take you long to work out which one is best value for money.

For your general weekly food shop you don’t need to spend over an hour in a mahoosive superstore where you’ll end up walking about 3 miles, and if you forget something from the back of the shop it’s going to take you several wasted minutes to get back there. To the wine. You forgot wine didn’t you? See, if you shopped at Aldi you’d know it is right by the till. Genius.

2. Try cheaper alternatives. I’m a big fan of buying mostly ‘basics’ items, ie, the cheapest option. They’re not always the most luxury item, and if that’s a problem for you, try the next one up, usually still a store’s own line. Seriously, I find it hard to understand why anyone would need to spend extra buying the leading brand of baked beans. I have tried them, and I’ve also tried all the cheaper ones and I honestly wouldn’t buy branded baked beans if I won the lottery tomorrow. I am a big fan of the budget bean, and if you live with someone who will only eat their trusted brand of canned baked beans, get them to do a blind taste test, or just trick them into eating cheaper ones and see if they notice. Even if they do notice or still swear that branded is better, consider if it’s worth the extra money? Or if you should live together.

I’m not saying you must by the cheaper options of every item on your list, but you should definitely try other alternatives.

3. Plan your meals. I sometimes get stuck in a bit of a meal rut and end up cooking the same things week after week. But it’s a good idea to get some other ideas, the BBC Good Food page is handy, as is the Change 4 Life website, for lunches, snacks and evening meals. Write a list of what you want to cook, say on a Monday morning and then you know what you need to buy to make those meals.

My favourite weekday meals for our family are pretty simple and don’t take too long to make. By planning in advance you can then do…

4. Bulk/batch cooking or cooking several meals in one session. It’s really easy once you’ve chopped up a load of vegetables to make several different meals in one go. If you’re chopping an onion for a bolognese, chop up a couple more or use a food chopper to make it quicker. Do the same with peppers and garlic for example, and then portion the piles of veg out into their intended meal-deployment roles and you’ve got the tedious part of cooking each meal out of the way in one go.

Meal suggestions I use regularly are bolognese (serve with spaghetti/pasta/potatoes/salad), chilli (pork mince is a bit of a different option and I kind of prefer it as a mince), lasagne, stuffed chicken breasts with cream cheese and pesto, carbonara, stir-fry, egg fried rice, curry, chicken and bacon salad.

5. Stock up on cupboard essentials like chopped tomatoes, tomato puree, stock and herbs/spices. Try not to buy packet mixes of spices or sauces. They are usually very high in sugar and salt and are extremely expensive for the amount you get, which is normally only one meal’s worth.

6. Raid the freezer sections! Frozen veg is amazing and can be really good value for money. It can also make cooking healthy meals a lot quicker and simpler as you can get a really good range of frozen ready-chopped veg in many supermarkets. Even things like chopped garlic, chilli and coriander are available which is a great time saver! If you have any sort of disability that means you find chopping food difficult this can be a really good life hack! I have just ordered my first Iceland frozen food shop and I shall be receiving it on Friday, at which point I’ll review how good it is!

7. Use leftovers. If you’ve cooked a few meals in one go at the beginning of the week there will probably be some left when it gets toward the end of the week. You might have a ‘kitchen tapas’ array of different meals on your plate such as a bit of lasagne and a bit of curry but who really cares? It’s food and it’s all going down the same way! Everyone knows chilli tastes so much better the next day, right?! If the leftovers don’t amount to enough for one or two adult portions, use them for the kids’ dinner. You can make small amounts go a long way for kids by adding a bit of pasta, beans, peas or a baked potato.

8. Write lists and stick to them. This doesn’t mean you can’t buy any sneaky little treats for the evenings after the kids have had monumental meltdowns and you need some chocolate, but plan it. Go to the sweet stuff aisle and choose something for when you have those cravings. Other than that, if you’ve planned your meals and written down what you need to get for each meal, shopping should be quite straightforward. A good idea is to go through the cupboards and fridge/freezer before shopping to see what you already have lurking in the depths of the kitchen, which means you might need to buy as much as you thought.

9. Don’t shop hungry! I honestly do this way too often. I tend to shop about late morning before my 4 year old goes to gymnastics and by that point I’m usually very hungry. I end up putting tasty treats in the trolley when I’ve actually already got stuff at home that I could’ve had before. It’s probably more sensible to eat some toast or something before shopping or you’ll end up being led by your ravenous thoughts when shopping rather than your more sensible ones.

10. Whose kids are really helpful in the supermarket? Anyone? No? No, because kids are annoying and they’re even more annoying when they can see My Little Pony magazines and luminous jelly sweets and novelty socks in the middle aisles (of joy) in Aldi. It’s very repetitive and frustrating to have to keep saying ‘no’ to their requests and you’ll either get cross or feel bad and buy them the things they pick up. Neither of which you really want to do. So unless you’re a very organised parent and have hand-drawn an illustrated shopping list, with clipboard and pencil so they can tick things off, it’s probably best for all parties if you try and get the shopping done when they’re at school or nursery. I don’t always have the option and believe me, it’s not always fun to shop with toddlers and young children!

I think those are most of my favourite tips and tricks for savvy supermarket shopping. Don’t forget to leave me a comment if you have anything else that you’ve found helpful as a parent trying to their best with the weekly food shop.

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Is it because he’s a boy?

I have 3 kids. The youngest of whom is nearly 17 months. He is a ‘he’. The other two are girls and despite my best efforts to not classify some of his behaviour as just ‘being a boy’ (which I really hate hearing. They’re children, they’re all different and I don’t want to be told that boys or girls will necessarily behave a certain way because of their being born a girl or a boy), he definitely seems to have a very specific difference in his personality in that he won’t stop climbing. On everything. Everything. The dining table. The coffee table. The bedside table. The TV stand. The bookshelf. My desk. Me. The shoe box. The other shoe box. The stairs. The toilet. His sister’s bed. Our sanity.

Call the Health and Safety brigade!

Some of it, is fine. It doesn’t bother me that he constantly wants to climb on his sister’s bed. In fact it’s quite cute. He climbs up, gets under the covers and lays his head down. It will be lovely when he’s big enough for his own bed. For now, he still sleeps in his cot (Haha! I say ‘sleep’, and then I laugh to myself and say ‘don’t lie to the readers of your blog. He doesn’t sleep!’) but bizarrely his cot is pretty much the only piece of furniture he hasn’t tried to scale. Yet. He probably will have by the time I publish this.

We thought, stupidly I guess, that getting out the little slide for him to climb up, and slide down gleefully would suppress his desire to climb everything else. But we were wrong.

We thought, stupidly I guess, that being away in a different environment for the holidays at Christmas would mean that once we got back, he might be over this phase and not be bothered by walking along the dining table every 3 minutes. But nope.

We thought, stupidly I guess, that removing him and saying firmly ‘No. We don’t climb on there/get down/we sit on chairs’ for about 4 months now, would mean that he may have gotten the memo by now. He did not get the memo. The memo was quite bloody obvious but was ignored.

He is pretty much disinterested in anything which doesn’t involve physical exertion. Play with other, actual toys is short-lived.

He played with the calculator for about 27 seconds.

One day, he had better be some sort of sporting hero, or an explorer famed for his courageous ascent of Everest in just his pyjamas or something. Then when he’s rich he can pay for our psychological therapy for these times when he drove us completely fucking mental because he just will not give it a rest.

Currently all 8 of our dining chairs are laying on their backs on the floor. The room looks untidy and like it’s got squatters living in it (we’ll blame his sisters for that bit), but despite not having any chairs to clamber on, he’ll find something else.

I’m pretty sure this wouldn’t be driving me quite so mad if I was able to easily grab him off of each thing he climbs up in a split-second. But being in a wheelchair makes grabbing a toddler from the middle of the dining table pretty difficult. Even more so because I don’t have much use of my hands either. Maybe I should explain to him about discrimination and mummy not being able to pluck him off of the bookshelf and how unfair this kind of behaviour is to me as a disabled parent he might rethink his decisions. Yeah right.

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What happened in 2017

First of all, where the hell has this year gone? I know everyone goes on about year flying by and years going by faster when you’ve had children especially.

But I’m quite seriously a little worried that physically, time is actually going faster. I mean literally… Literally literally.

I don’t feel like enough has happened to fill up 12 months, but I guess a lot has happened.

Just after the new year in January my partner’s family went through a really scary time with an immediate member of the family. They are my family too. We were expecting the worst, and although the worst didn’t happen, we almost lost somebody fundamental to my partner’s life and a lot was lost. I spent a long time being petrified of every phonecall whilst my partner was away, and above all terrified at how this would affect him. Knowing that I couldn’t fix it for him was awful.

I can’t quite believe that it is almost a year since it happened.

What else happened in 2017?

Well, Rafe turned into a proper baby-toddler person and not just a vegetable. He started walking at 10 months. Then he started climbing shortly after. He has not yet stopped climbing. Our favourite phase became “get down”, much like when you have a dog. Except unlike a dog, bribery with food items was short lived and now he just laughs in our faces. He is so much more mischievous than the girls were. It’s a good job he’s cute.

I started making YouTube videos. Well, I say start – I started a few years ago and only uploaded videos sporadically but I love the satisfaction and buzz you get from filming and editing your own little movies and with my trusty Tom by my side teaching me how to do a lot of it, I’ve started making videos much more often. Hopefully 2018 will see another increase in the amount and quality of videos Tom and I can make. Mostly to do with our life with three kids and me being a disabled mum but with the odd Poundland/Primark Haul thrown in. Just because I am a woman I guess.

In 2017 I had a bit of a first in that I spoke at the WOW Women of the World Festival in Exeter, where I was part of two separate panels talking to audiences about childbirth experiences and about the Women’s Rights Movement marginalising disabled women. It was scary, nerve-wracking but apart from all that I am so glad I did it. I hate speaking in front of groups of people and I think I always will. Yet for some reason I want to be involved again and do more things like that. I’m hoping to be involved in the CMT (the neurological disease I have) Festival in some way in April.

I won a long-standing annual family tournament which might not sound like much to those outside the family, but it’s quite the event and I love seeing everyone get involved each year.

Amélie, our eldest was the bravest of brave girls having double eye surgery and took it all in her stride. She also got moved up into one of the gymnastics squad groups and I have loved seeing her finally get that fire in her belly to do better. She is doing marvellous work in school and has grown in confidence so much.

Geneviève is in her last year of nursery before starting proper school in September. Bizarrely the prospect of Geneviève starting school feels more scary than when Amélie started. I’m looking forward to seeing her joyous little face as she learns to write her own name properly. We’re getting there but the poor child has quite the mountain to climb there with all the Es under the sun. At least she’ll be almost 5 when September comes.

So here’s to another year of all that comes with having three kids and hopefully making more time to be creative and productive.

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When you’re 6, tired and hungry

We went out to watch the local fireworks last night and while we were there we bumped into one of Amélie’s best friends from school. She was desperate to try and see her friends but when she saw one of them she was very quiet, and although this little girl was so excited to see Amélie and was walking right by her, chatting away to her, Amélie ignored everything she said and just kept facing the other way.

I kept saying to her how she shouldn’t ignore her friend as she is talking to her, but Amélie remained silent and non-responsive to her friend. I felt awful for her and eventually she kind of gave up trying to chat to Amélie. It was about 5.30pm, and Amélie was both hungry and tired as her little brother had been crying in the night before. I am sure this was why Amélie wasn’t feeling very sociable when she saw her friend, but even so we explained to her that even though she was tired and hungry, she should still speak to her friends when they talk to her. Amélie has this trait where she just shuts down and won’t respond when she finds something difficult or when she’s anxious. I really don’t want this to mean that people think badly of her, or feel that she’s rude (which is exactly how I would’ve read last night’s situation).

Today, she was writing Christmas cards for her school friends and I said maybe she could write a note to say sorry in the card for her friend from last night. The picture here is some of what she wrote in the card. She went on to draw a picture of,the two of them and the words “best friends forever”.

It’s hard being 6, isn’t it?

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No, she is not a child carer

Yesterday, I had to take my 6 year-old daughter to A&E because she had hit her head at school and cut it open. On the phone to the school receptionist I was told they’d called an ambulance because her behaviour had changed and she was very pale. I panicked, and left work as quick as I could, bursting into tears as I went down in the lift. What exactly did they mean when they said she had a cut to her head?

I got to the school ten minutes later, about 30 mins after she’d hurt herself.  She was very quiet and pale looking, and didn’t want to talk much. A teaching assistant was stood outside waiting for the paramedics to arrive, except nobody arrived, and instead the ambulance control centre rang my number an hour later, to triage her over the phone, wanting to speak to Amélie herself as well. She didn’t want to talk to the stranger on the phone, and he asked me more questions, then decided she didn’t need someone to come out to her and that we should take her to hospital instead. Quite why they couldn’t have let us know that an hour before, I don’t know. Anyway, we got to A&E and were seen by a triage nurse relatively quickly, and then by the doctor after another wait. But it was a nurse practitioner who saw my daughter after the intitial consultation by the doctor, who said something which frustrated me. I had been quite relaxed after getting Amélie to hospital and knowing she was in good hands and we knew what was going to happen. But the nurse practitioner asked Amélie a few questions just to check she could remember things ok and she was otherwise well after the head-bashing. One of her questions was about at home, and whether she  ‘helped look after Mummy’.

I see. So we went from ‘aww poor girl, she has cut her head open, let’s make her better’ – to ‘aww poor girl, she has cut her head open AND she MUST be a young carer as well, brave little thing’. She asked me if Amélie was a young carer to which I replied ‘no, she’s not’, and she said ‘no but I’m sure she has some caring resposibilities to help you, do the school know, are they aware she is a young carer?’, and so on. She told me it might be good, for Amélie, if the school were aware she might need to help me sometimes.

SHE IS NOT A YOUNG CARER! She is a 6-year-old little girl who happens to have a mum who’s in a wheelchair. The school know me well enough, and they also know I have a very caring and supportive partner who works full-time, and I have a PA who, surprisingly, fulfills the role of ‘helping Mummy’ when I’m not with my partner. My PA was sat right next to me at this point. My daughter doesn’t need to look after me.  I look after her.

Yes, she is able to fetch things for me and she can grab her baby brother out of the bathroom when he’s gone to explore the toilet, but as far as I’m concerned that does not constitute a young carer, who needs keeping an eye on to check she’s managing her complicated life okay.

If I wasn’t a wheelchair user, I’d still get my kids to fetch the baby wipes when I can’t grab them, or to run and close the stairgate when their brother is about to venture upstairs, and they are nearer than we are. I know able-bodied bodied parents that are lazier than us!

It makes sense to get kids to be helpful in their day-to-day life, and know that it’s just a nice thing to do. I hope they are helpful to their friends and teachers alike. My kids are pretty independent too, possibly because I can’t do everything for them that most mums can and  although daddy takes care of most of the physical side of childcare when he’s not working, I think they’ve learned useful tasks earlier than most kids would happen to. Amélie makes cereal for her and her sister, she can make drinks and loves that she can make her own sandwiches when she wants to. She has even taken to flying unaccompanied to Spain for a weekend get-away once a month in a rented villa she found, whilst backpacking in her gap year between nursery and primary school. She really needs the respite from taking care of her entire family.

Of course I’m joking, but on a serious note she does not need to be my carer. Young carers are amazing, and what they do for their mums, dads and siblings should never be taken for granted. And indeed, they might need someone to check-in with them every now and then to make sure things are working and that they have time for themselves. But I have my own PA, so that won’t need to be the case with our children. They’re just regular children and until I’m old and losing it, they can have their childhood.

I think the nurse practitioner may have realised that she’d gone a bit too far with her assumptions, as before Amélie had her head stitched up, she came and sat next to me and asked about my ‘medical history’  (like every parent in A&E with their child gets asked, right?!) and said that it was great that I just got on with life and that I wasn’t really disabled as I don’t let it affect me. She clearly hasn’t read this blog!

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