15 things only disabled people will understand (get annoyed by).

1. You use a wheelchair. It is not something you’re bound to and is actually just a slightly more convenient way of moving around.

2. Knowing the exact terrain of a certain journey by foot/wheel and precisely where every bump/ramp/jagged bit of concrete is.

3. Also the frustration of trying to find a kerb drop when trying to move on or off a part of the ground/grass.

4. Whilst you might love the idea of a hot sunny day, the thought of your skin on your lower back and legs sticking to your chair fills you with dread.

5. Being known as ‘the person in a wheelchair’ before any of your actual characteristics, but also knowing it’s a quick way to distinguish yourself from others; for instance when booking a hair cut, “I’m the mum in a wheelchair that you saw back in April”.

6. Not being able to watch or partake in simple events/groups purely because there are stairs.

7. Getting annoyed at your own clothes for not sitting right on your wonky body.

8. Denying yourself another cup of tea because the faff of going to the toilet again is too much of an inconvenience and you have other things to be doing.

9. People’s assumptions. Of everything.

10. Other people leaning on the handles of your wheelchair and the mini heart attack you have when you think you might tip back and die.

11. Not being able to visit certain friends’ houses because of the access or lack of downstairs toilet. Tea is always at your house.

12. Being mistaken for the 4th child when turning up at a restaurant with your partner and 3 kids.

13. Hearing waitresses ask your partner if you’d like to stay in your own wheelchair or sit on one of their’s. I can indeed answer that question myself.

14. Having a logical preference for certain types of table legs. And mugs. I’m not even going to bother explaining that and just leave it sounding weird.

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Sedated 

You’re given this body. It’s a bit squishy but all the parts are there -arms, legs, eyeballs, ear loabs, that pointless snot-funnell under your nose – there you have it, it’s yours to do with what you will for the rest of your life. 

So what do you do with it? If you’re lucky you’ll get one without too many snags or software issues but if you’ve been handed a wild card and aren’t quite sure, where do you go with it then?

Perhaps abuse it a little at first, break some parts as a kid then they’ll heal quickly with any luck, and when you get to your later teenage years and beyond, feed it some sugary poison and see what happens. 

Then what? You might be doing some of the same things as other kids your age and some things will make you momentarily feel as free as a bird. Like jumping on a trampoline in your purple club leotard that makes you feel really special. There’s nothing better as a child than a lycra leotard. You just want to stroke your own shiny belly and feel like you have a perfect body like all the other girls. [That sentence sounded a lot less creepy before I wrote it]. 

Unfortunately, that doesn’t last long, that freedom. Nope. It stops fairly abruptly and in some respects it feels more unfair than if you’d never had it in the first place. Nothing tragic happens, but the wiring in your body starts playing up and affecting you more than ever. You’ll be sat in the car one day on the way to the beach with your mum and you might suddenly notice that you can no longer move your little finger. Buh-Bye then. It was nice knowing you. That’s all ten then now!

Maybe a few lunchtime sessions of wheelchair basketball in school will be a fruitful endeavour. You do really enjoy throwing a smaller-sized ball in a lower-set basket. You get ‘Most Improved Player’ after a few months and then remember the irony that is the inevitability of earning this title when the only other player in a wheelchair, playing on the opposing team, is a kid borrowing another wheelchair. Now you feel like you’ve truly earned that sporting title (!) 

Fast forward a few years and almost every day, without exaggeration, is peppered with thoughts of ‘I wish I could do more exercise’. Trawling through YouTube videos searching for inspiration and finding absolutely nothing. Disabled people don’t exercise. Only the people in the Paralympics. And they are robots. Manufactured in a factory in Milton Keynes and made to order every few years to prolong the excitement of the Olympics. They don’t exist because there are no opportunities for this sort of talent to be nurtured. Or maybe it was just my luck. In the new term of starting secondary school, I was told I ‘wouldn’t be doing PE’. So that marked the end of any potential skill or ability to keep fit I may have had if anyone had bothered to try like they do with other kids. I never got to smell the school changing room sweat or be the one that put all the javelins back in their… javelin cage. 

And so the time comes around again where all thoughts of your body, skills, appearance, fitness, weight etc, are not dissimilar to that awful feeling you get when you walk into a noisy bar and there’s too much raised-voice ranting for normal people to be able to think straight and you’d quite like to turn around and walk out again. Then you see yourself sat in a chair and looking decidedly lazy and know that something needs to happen. 

Your best bet is to sit on the floor in your living room and make up exercises that are possible yet still a challenge for someone with no muscle in their legs or lower arms. Making up hybrid exercise routines is necessary because like I said, disabled sports do not really exist. You either do nothing or you go the whole-hog and break world records in stadiums. There is no in between for people like me.

Then you take your little girls to gymnastics and watch the eldest in her session, from the viewing area thinking:

“Please, please want this as much as I want this for you. You are perfect and you have all these opportunities right at your feet and you can be brilliant, so please use it. Use these opportunities and your body and your strength and all these people telling you you’re doing really well. Don’t ever stop doing it. Whatever it is.”

And that goes for all of you.