When you’re 6, tired and hungry

We went out to watch the local fireworks last night and while we were there we bumped into one of Amélie’s best friends from school. She was desperate to try and see her friends but when she saw one of them she was very quiet, and although this little girl was so excited to see Amélie and was walking right by her, chatting away to her, Amélie ignored everything she said and just kept facing the other way.

I kept saying to her how she shouldn’t ignore her friend as she is talking to her, but Amélie remained silent and non-responsive to her friend. I felt awful for her and eventually she kind of gave up trying to chat to Amélie. It was about 5.30pm, and Amélie was both hungry and tired as her little brother had been crying in the night before. I am sure this was why Amélie wasn’t feeling very sociable when she saw her friend, but even so we explained to her that even though she was tired and hungry, she should still speak to her friends when they talk to her. Amélie has this trait where she just shuts down and won’t respond when she finds something difficult or when she’s anxious. I really don’t want this to mean that people think badly of her, or feel that she’s rude (which is exactly how I would’ve read last night’s situation).

Today, she was writing Christmas cards for her school friends and I said maybe she could write a note to say sorry in the card for her friend from last night. The picture here is some of what she wrote in the card. She went on to draw a picture of,the two of them and the words “best friends forever”.

It’s hard being 6, isn’t it?

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Baby product reviews – nappies, wipes, cups and potties.

I’m three kids in so I feel like now might be an acceptable time to review a few baby, toddler and children’s products and even a few parents’ products. I’m a disabled mum of three, ages 6.5, 4 and 1 years old.

I’ll start with nappies as I’m pretty sure most mums and dads will have come across one every now and then with having a baby. My favourite nappies by far are Aldi Mamia nappies. At the moment my 13-month-old son is in size 5 (although he can also fit in a 4+), and you can currently get a pack of 40 nappies for £2.99. For the equivalent of a leading brand, you should expect to pay more than double. You might think ‘well lower cost = lower quality’, but no. I find Mamia nappies are perfectly soft and comfortable, hold their structure well with minimal sagging after 1 wee. They have good coverage to hold in most normal poo episodes (poopisodes) – I say ‘normal’ because there are some poo explosions that just won’t be contained by a nappy. Never underestimate the force with which a small child can fire their own poo up their back whilst sat down. Mamia nappies are pleasantly decorated, with an array of jungle animals. To be honest none of my three children have ever paid much attention to pictures on nappies, but maybe that’s just them. They last a good 12 or more hours of night-time weeing, without leaking and don’t create a strong chemical smell when they’re very wet. According to Aldi, they are extra soft, breathable, hypo-allergenic and dermatologically tested, and are regularly tested for effectiveness against the leading brand. They are comfy, work really well and don’t cost much. Therefore they’re winners in my book. A book which doesn’t physically exist.

Mamia Ultra Dry Nappies Size 5

Wipes – I probably think about wipes a bit more than is necessary even for a mum with three kids, but I feel it tug right at my heartstrings when they start putting FEWER WIPES PER PACK! Why? A while ago, pretty much all supermarket wipes had 80 per pack, and cost just under £1 for a pack, or £3 something for a pack of 4 – stay with me folks – leading brand wipes had less, either 72 or 64, and then some had 56. That is 24 less wipes than what I would call a normal amount of wipes per pack. I really think too much about this. Anyway, now most supermarket brands have 64 wipes per pack, and then Asda’s Little Angels range started producing an ‘extra large’ pack, with 80 wipes, like it was a new thing to sell 80 wipes per pack. I wish they would just pick a number closer to 100 and stick with it, then we wouldn’t have to keep opening new plastic wipes packing every few days, and maybe each pack would last longer.

Favourite wipes – again the prize for my favourite wipes currently goes to Aldi Mamia wipes. Granted they have only 64 wipes per pack, but they are a good price, currently only 55p per pack, or £2.09 for a 4 pack. They are a nice soft texture, don’t rip when you take them out of the pack which is convenient although as far as I know, a wipe that rips means it’s probably made from renewable/recycled natural fibres like tissues are, and therefore better for the environment than a woven ‘cloth-like’ wipe. But I’m only a mum guessing, I may be wrong! They have a closing plastic lid, meaning the wipes shouldn’t dry out, although personally as my hands don’t work very well, I find these more difficult. The sensitive unfragranced wipes are what we usually get but the fragranced packs are also good for when it comes to cleaning hands, or wiping sick off your top in desperation as it masks the aroma a little!

Mamia Sensitive Baby Wipes 64 Pack

Drinking cups – I think over the last few years we may have bought almost every cup going – valved, free-flow, non-spill, straw, 360… my partner thinks I’m slightly crazy as I can’t resist a new cup. They are so pretty! But at the moment I am liking the Nuby 360 cup as it’s pretty much non-spill, and encourages drinking from the edge of the cup. So it makes for a good transition to drinking out of an open cup.

360 Mini No Spill Cup 240ml (4-12m) RED/ROCKET

I have also always been a fan of the standard Tommee Tippee free-flow cup which is great for all ages even young babies of 4-6 months. It’s free-flow so babies might get a bit of a shock when the water flows quite freely into their mouth but it teaches them to moderate the flow themselves. This is a good cup for babies who might struggle to suck out of a valved cup. It’s also a very good value cup, generally found for less than £2 in a choice of colours. #parenton

First sippee cup blue 1 count

Potties – when it comes to toilet training, nothing is more exciting than choosing your first potty. For the child I mean, for the child, not me, I don’t find it exciting at all. Much. We have had a few over the years but the one I’ve preferred and which has worked best for our middle child (when we got it) was a potty like this – ours was unbranded from Tesco  and is just plain pink, but has the same ‘steady’ design and looks comfier than the others we have had. It has grippy feet so won’t slide out of the way as your child goes to squat down on it (disastrous), has a broad seat so it doesn’t dig into the backs of their little legs and a high back so they are a bit more supported as they sit. I’m sure our boy will use it even though it is pink and that will mean he will turn gay, but nevermind.* This potty only cost around £5 and does a perfectly good job of being a potty. It doesn’t sing songs or have a heated seat but our daughter seemed to survive the ordeal of sitting on it.

In my next reviews I will be focusing on clothes and shoes for children!

*Please be assured I am joking.

Twitter @shopgirlygm

Instagram @lizzybuntonvlogs

WOW – I’ve got to speak in public!

Tomorrow, and the day after that, I have to speak in front of an audience. I say ‘have’ – I was asked and I said I would. Slightly wondering what on Earth I’ve got myself into. Am I going to be well out of my nervous depth?

Image result for wow women of the world

I am going to be part of two discussion panels at the WOW – Women of the World festival. Click the link to see the website and what it’s all about but, essentially it’s a festival celebrating and discussing all things woman – what women experience specific to their sex and gender, how perceptions of women are changing, what sort of power women have and how things that only women can physically experience, like childbirth or miscarriage, can affect both women and society as a whole and how these things are changing rapidly. Both for better and worse. It will be fascinating, to say the least, to be a part of this and also to be part of the audience for other parts. I love seeing how the way humans exist differs from culture to culture and I think I’d like to go to the festival even if I wasn’t involved in it. In the news today they are discussing how 1 girl in 10 in the UK doesn’t have access to appropriate menstrual products. How is this even the case in 2017?

I was approached by one of the lovely programmers who had read my blog, and she asked if I’d like to be involved in both the Birth Stories panel and the Disability, Women and Taking Action panel. I could’ve chosen to not take part, or even just speak at only one discussion, but both are so important to me and how my life is currently turning out that I felt like I should do both, or I’d really regret it. I’d kick myself if I was to watch someone else possibly with a disability talking about their experiences of childbirth, in the UK, and think that perhaps I could’ve added something worthwhile, or something people should hear (god that sounds knobbish).

Anyone who knows me probably knows that I don’t often partake in public displays of verbal discussion – I used to find any reason at all not to have to read aloud to the class in school, college or university, my mum had to recite the Brownie Promise* for me when I was a child because the idea of everyone looking at me while I spoke made me burst into tears. And although my partner and I will be getting married in the near future, the thought of being the centre of attention and then having to speak ACTUAL WORDS in front of a group of people gives me the heebies, and even the jeebies. I think I might get married in a cupboard. [*I’ve just watched some videos on YouTube of girls doing their Brownie Guide Promise and I’m a little freaked out at how archaic and cultish it seems!]

So tomorrow I shall be talking about my experiences of childbirth (involving my own children, I don’t quite remember my own birth). I LOVE talking, very openly about pregnancy and giving birth. That is when I’m only talking with one or two people. But maybe I won’t spontaneously combust and I will find some legible sentences from within, to talk about something that I love so much – giving birth to my own children. Giving birth as a severely physically disabled woman was always going to be a bit of a science experiment for me and I think for the medical professionals too. but it went surprisingly well compared to what I imagined it might be, so that will be my angle of discussion – The Science Experiment of a Disabled Woman Giving Birth (Star Wars font please) Hopefully, people will be able to hear me, I’m told there will be microphone technology!

On Sunday, I will be talking alongside more lovely ladies including Liz Carr (of stand-up comedy, disability activism and Silent Witness fame). We will be exploring how often it is disabled women who are left out almost entirely when it comes to the Women’s Rights Movement, and what some of the key battlegrounds are around being female and having a disability. This will involve talking about anything disabled women experience from education, healthcare, finding and sustaining a career and attitudes from people that along with millions of others, I experience on a daily basis. Something as small as a shop assistant addressing my PA instead of me is only the start of it. I think my angle for this talk will be about wanting my life with a disability to just be as easy or as difficult as if I didn’t have a disability. I don’t want to be seen as an inspirational person just because I have eaten toast for breakfast without crying about being disabled. Although come this weekend I may well be blubbing into my morning cup of tea.

I will update in due course with how successful this weekend was….. ahhh.

@shopgirlygm

Insta – @lizzybuntonvlogs

I won!

I love sport.

There’s something you wouldn’t have expected me to start with. But I do. Well, some sports anyway. I am a great lover of Wimbledon tennis in the summer and I adore watching gymnastics, diving, swimming and athletics. I used to do gymnastics growing up from ages 6-12 and I also dabbled in wheelchair tennis in secondary school (it was hard to progress from dabbling when you are pretty much the only wheelchair user in a school in a small Cornish village).

But nevertheless, I think I would love to have nurtured some kind of sporting skill if my body had given me the chance, and the working nervous system that is quite fundamental to sporting victory.

But at age almost-31 I have just had my first major sporting success. The annual tournament is a family affair, previously revolving around a golf match (is it a match?) which took place at unsociably early hours on Sunday morning of the bank holiday weekend in August, and the women and children of the family occupied themselves with other activities for the day, such as making sandwiches and changing nappies until we all met up again when the golf was over and we’d have a big buffet-style tea in the garden of the previous year’s winner.

It is always lovely to see all the family in one place, and to try and remind myself of all the names of the great aunts, uncles, cousins removed, cousins’ children and second cousins etc (seriously, Great Granny, how on earth did you cope with six kids) and in recent years the sport has changed to a version of bowls (there are flags and string points markers involved but I don’t know what the actual name is. It just takes place on a bowling green with bowls balls so it seems appropriate to refer to it as bowls). Pretty much everyone in the family now gets involved, we are split into teams and play around the 8-flag course twice. Some members of the family already play bowls and so have an idea of how to throw the balls – they aren’t actually spherical and one side is weighted making it want to veer off to one side – but there is a handicap system in place allowing even novice players to be in with a chance of winning if they score highly enough.

But even with the handicap available, it still would not be a level playing field for me (insert bowling green pun here).

I have no muscle whatsoever in my hands and lower arms, any strength I do have has to come from my upper body, and the only way I can hold a ball is by relying on the tendon resistance in the extension in my wrists/hands (pictures to follow!). Even still, standard bowls are too heavy for me to lift let alone lob into the air (I mean, roll gracefully), so I play using two jacks, which are slightly smaller meaning my child-sized floppy hands can just about lift them. But even with this allowance, I would not be able to get the ball anywhere near the desired region due to my lack of strength, so I position myself about half way towards the post. Only then can I attempt to actually use some skill to get the balls as close to the post as I can, which is exactly what everyone else is trying to do.

I’m pretty sure my spacial awareness is slightly more ‘well-practiced’, than the average mum who doesn’t partake in a particular sport, simply because I have to use spatial awareness all day -steering an electric wheelchair through narrow doorways, or pushing a manual wheelchair amongst a room of small children and Duplo and trying not to break either. Also if I am trying to pick up a small item it takes a lot more concentration to persuade my hands into getting to the right place in order for something to hopefully fall perfectly and conveniently into my hands just so I can put moisturiser on my face, for example.

Well anyway, I am rambling. Cut a long story short, I won.

The family tournament which is in its 23rd year and is really a much-loved family tradition and something I hope my own children will still attend after I’m gone, I won. I scored 86 even without the handicap added, which I am most proud of. The coveted prize is my maternal Great Granny’s wooden walking stick which has been decorated with the winners’ names engraved on little silver shields since 1995 after Great Granny died.

We met at my Gran’s cousin’s house for a BBQ, feast, drinks and of course the awards ceremony. I knew I had scored quite well whilst we were playing but of course, I didn’t know others’ scores so when they announced my name as the ladies’ winner and overall winner it was a bit surreal. My first thought was “Oh shit. I’m going to have to make a speech”, and I hate talking to groups of people, and even more so when it involves speaking about myself. I’d much rather address the masses via computer keyboard where no one can hear my annoyingly quiet voice and see my awkward face. I sat for a few moments cleverly diverting attention to the kids who were playing with my prizes, all the while thinking “I’ve got to say something. They’re expecting me to say something. I want to leave now.”, but I managed a short, muddled and awkward little speech where most of what I said was trying to excuse my winning, and get across that I wouldn’t have had a chance against everyone else if I hadn’t been allowed use smaller balls and start closer to each post. Everyone clapped and congratulated me, my Gran’s youngest brother who organises a lot of it, seemed genuinely pleased that I’d finally won, after being close a few years ago. I worried some of the family might think I hadn’t really won, fair and or square but everyone seemed pleased. Tom was especially proud as was my mum who wasn’t there this year.

But most importantly, I won Granny’s Stick before my big brother.

@shopgirlygm

No, she is not a child carer

Yesterday, I had to take my 6 year-old daughter to A&E because she had hit her head at school and cut it open. On the phone to the school receptionist I was told they’d called an ambulance because her behaviour had changed and she was very pale. I panicked, and left work as quick as I could, bursting into tears as I went down in the lift. What exactly did they mean when they said she had a cut to her head?

I got to the school ten minutes later, about 30 mins after she’d hurt herself.  She was very quiet and pale looking, and didn’t want to talk much. A teaching assistant was stood outside waiting for the paramedics to arrive, except nobody arrived, and instead the ambulance control centre rang my number an hour later, to triage her over the phone, wanting to speak to Amélie herself as well. She didn’t want to talk to the stranger on the phone, and he asked me more questions, then decided she didn’t need someone to come out to her and that we should take her to hospital instead. Quite why they couldn’t have let us know that an hour before, I don’t know. Anyway, we got to A&E and were seen by a triage nurse relatively quickly, and then by the doctor after another wait. But it was a nurse practitioner who saw my daughter after the intitial consultation by the doctor, who said something which frustrated me. I had been quite relaxed after getting Amélie to hospital and knowing she was in good hands and we knew what was going to happen. But the nurse practitioner asked Amélie a few questions just to check she could remember things ok and she was otherwise well after the head-bashing. One of her questions was about at home, and whether she  ‘helped look after Mummy’.

I see. So we went from ‘aww poor girl, she has cut her head open, let’s make her better’ – to ‘aww poor girl, she has cut her head open AND she MUST be a young carer as well, brave little thing’. She asked me if Amélie was a young carer to which I replied ‘no, she’s not’, and she said ‘no but I’m sure she has some caring resposibilities to help you, do the school know, are they aware she is a young carer?’, and so on. She told me it might be good, for Amélie, if the school were aware she might need to help me sometimes.

SHE IS NOT A YOUNG CARER! She is a 6-year-old little girl who happens to have a mum who’s in a wheelchair. The school know me well enough, and they also know I have a very caring and supportive partner who works full-time, and I have a PA who, surprisingly, fulfills the role of ‘helping Mummy’ when I’m not with my partner. My PA was sat right next to me at this point. My daughter doesn’t need to look after me.  I look after her.

Yes, she is able to fetch things for me and she can grab her baby brother out of the bathroom when he’s gone to explore the toilet, but as far as I’m concerned that does not constitute a young carer, who needs keeping an eye on to check she’s managing her complicated life okay.

If I wasn’t a wheelchair user, I’d still get my kids to fetch the baby wipes when I can’t grab them, or to run and close the stairgate when their brother is about to venture upstairs, and they are nearer than we are. I know able-bodied bodied parents that are lazier than us!

It makes sense to get kids to be helpful in their day-to-day life, and know that it’s just a nice thing to do. I hope they are helpful to their friends and teachers alike. My kids are pretty independent too, possibly because I can’t do everything for them that most mums can and  although daddy takes care of most of the physical side of childcare when he’s not working, I think they’ve learned useful tasks earlier than most kids would happen to. Amélie makes cereal for her and her sister, she can make drinks and loves that she can make her own sandwiches when she wants to. She has even taken to flying unaccompanied to Spain for a weekend get-away once a month in a rented villa she found, whilst backpacking in her gap year between nursery and primary school. She really needs the respite from taking care of her entire family.

Of course I’m joking, but on a serious note she does not need to be my carer. Young carers are amazing, and what they do for their mums, dads and siblings should never be taken for granted. And indeed, they might need someone to check-in with them every now and then to make sure things are working and that they have time for themselves. But I have my own PA, so that won’t need to be the case with our children. They’re just regular children and until I’m old and losing it, they can have their childhood.

I think the nurse practitioner may have realised that she’d gone a bit too far with her assumptions, as before Amélie had her head stitched up, she came and sat next to me and asked about my ‘medical history’  (like every parent in A&E with their child gets asked, right?!) and said that it was great that I just got on with life and that I wasn’t really disabled as I don’t let it affect me. She clearly hasn’t read this blog!

@shopgirlygm

facebook.com/haveyoutriedwalkinglately 

10 Signs You Love Parenting 

Disclaimer: please read 10 things you can’t stand about parenting’ if you’re not in a positive parenting place right now, like me most mornings. That fluffy focus-on-the-good parenting stuff needs balancing out a bit.

 

1. Spending ridiculous amounts of time just looking at your baby/child. You know their every detail to the extreme, and of course they are the most beautiful thing you’ve ever seen. You often feel smug when you look at people who aren’t your child’s parent (so pretty much everyone else except your partner) and gloat inwardly that they don’t get to look at your child every day. You regularly feel the urge to ferociously approach strangers crying “look at her face, she is beautiful!” because, they didn’t seem to be paying much attention.

2. Feeling that aching proud feeling in your chest when they’re so scared to swim in the swimming gala but they do it eventually. Even though they came last, they did it. All the other kids were probably doping anyway.

3. Watching your kids hug each other. It’s quite a skill to have made a little pack of humans whom you hope will confide in each other when they’re bigger and always have a friend who knows them so well. This morning I overheard my two eldest discussing how they liked ‘their baby [brother]’.

4. Wanting to bottle the smell of your baby’s head. I know it’s a cliché but if one of my kids is sat on my lap it’s quite likely that I’ll have my nose in their head (that sounds normal), which is fine until they notice and tell you to stop sniffing them.

5. Loving the power that the iPad or sweet foods has over other humans. I am God. You can make them tidy anything with the promise of an ice lolly.

6. When their favourite song goes from ‘Twinkle Twinkle Little Star’ to something over 20 seconds long and becomes ‘Paranoid Android’ by Radiohead, like my 6 year old daughter (which Daddy is very proud of).

7. Watching them learn to read, or write their own name. The months of choosing their name suddenly becomes a lot more serious. (May have set the bar quite high for our daughter Geneviève, poor kid.)

8. Sitting on the floor and having your baby crawl over to you and rest their head on your thigh. Loving that you’re what they want right now, not a brightly coloured, obnoxiously noisy toy in the corner.

9. Spending weekends watching them run around in the sun and play in trees, or even just giggle at cartoons. This is their childhood. Remembering what you remember from your childhood and realising that this is that, for them, right now. Wanting to make it brilliant.

10. Having made some freshly squeezed brand new people that are largely part of you, but are also separate beings and wanting them to be a bit like you, but also have a better life than you. You know they will probably make the world a tiny bit better.

 @shopgirlygm

10 Things You Can’t Stand About Parenting 

Disclaimer: read ’10 signs you love parenting’ for if you need to be reminded that you do love it really.
1. When someone misidentifies the gender of your baby. You may like to think you’re quite a liberal parent and want to buy your girl a red truck for her birthday, saying ‘fuck you’ to gender stereotypes, but it’s still a little infuriating when your dainty little girl dressed in a blue dress and flowery sunhat gets told she is a handsome young man.

2. Mornings when you feel your stomach acid start to bubble up due to the rage caused by the amount of times you have to tell your daughter to not just stand there in yesterday’s pants for a further 23 minutes, but actually make movements – any freaking movements at all – to get some additional kind of clothing on. And also, when you ask what on Earth they’ve been doing for the last half an hour they seem to have no recollection of their activities. Astonishing. Like it’s been erased from their memory. Which reminds me…

3. Sometimes, they remember everything. Apart from important stuff. But they do somehow remember that last week you promised them they could have packed lunch at the end of this week, and now it is Friday, 8:27am and you now have an obligation to rustle up a nutritious picnic for the clever little thing.

4. You want to be a fly-on-the-wall at school lunch time and have the power to poke other kids when they say something mean to yours. You hate the idea that your daughter is sad and you’re not there.

5. Dressing babies. Due to my disability I can’t do this myself but I’m usually the one trying to pin said baby down while others try to insert him into trousers. They should use this activity to torture prisoners – see how long they last with a baby (okay maybe just a doll) who, just when you’re getting leg #2 into place, they retract leg #1. Leg #2 then becomes leg #1 and the ordeal is repeated about ten times. It’s the same with sleeves and shoes. You all end up screaming and you put your son in a dress and be done with it.

6. They do not want you to sleep. Babies are arseholes during the night and that’s all I have to say on the situation.

7. When you’re supposed to cook something nutritious to fuel their growing bodies but you’ve just got home and it’s 6pm – fridge tapas will have to do. You boil up some pasta, add cheese and a bit of sandwich pickle, some sliced up cold sausage from the weekend BBQ, and throw in some frozen mixed veg to pretend it’s healthy. They don’t eat it, and instead have some questionable yoghurt from the back of the fridge for dinner. If they get the runs it’s their own fault.

8. Meltdowns which occur outside the home. Nothing screams “look how shit I am at parenting!” than when your child decides to lie down on the floor in the frozen section in Morrisons. You’re a mum in a wheelchair and the verbal attempts to get your child to stand up are not working. Then the Parent Samaritans rock up and offer help and you just want to scream “You can fuck off too. Leave me alone.” in their face. You’d quite like to just ignore your child and leave them to their tantrum as you might at home, but unfortunately it is frowned upon in the public arena.

9. Morning wake-up calls before 7am when you’re not getting up early to go on holiday. I love that my kids want to snuggle in bed next to me in the mornings but when they are 3 and 6 years old, it is 5.48am and within 3 minutes they are arguing about not having enough space or any covers, you regularly scream “it is MY bed, it’s not even 6 o’clock, bugger off”. You load YouTube on your phone and some sickly sweet video of some girls unwrapping Frozen-themed Kinder Eggs, and send them on their way. You’ll deal with the post-YouTube comedown later on.

10. After all the other trivial, albeit shitty stuff that happens day-to-day as a parent, you have the overwhelming sense of disappointment that you can’t give them everything you want to. You can’t promise the world will be nice to them always and you can’t promise nothing bad will happen, and that sucks.*

*Although you can help them to be strong, loving and open-minded people, and that might help with those things.

@shopgirlygm